TABLE 1

Themes Related to Children's Understanding and Preferences for Involvement in Research

Research
    Familiarity
    Knowledge
    Awareness
    Understanding
    Appreciation
Decision-making
    Decisional priority
    Types of decisions
    Role in decision to enroll in the protocol
    Preferences/perceptions
    Suggestions
  • Definition of concepts (ie, understanding, knowledge, etc) is provided in the text.