TABLE 1.

Study Measures

MeasureInformation SourceNo. of ItemsSample Item*
Child's distress
    Severity indexStudy coordinator8Duration of hospital stay, PICU admission, supplemental oxygen, apnea episode
    Global rating of healthStudy coordinator1Imagine a scale from 0 to 100, where 0 represents the worst imaginable health and 100 represents the best imaginable health. What number would you assign to your child's current health?
    Functional Status IIRCaregiver14Did your child seem unusually irritable or cross? Did your child eat well? Did your child have trouble doing things for (him/her)self that you thought (he/she) could do? Was this due to illness?
    Global rating of stressCaregiver1On a scale from 1 to 7, with 1 representing “not stressful at all” and 7 representing “very stressful,” how stressful have the past 24 hours been for your child overall?
    Global rating of healthCaregiver1Imagine a scale from 0 to 100, where 0 represents the worst imaginable health and 100 represents the best imaginable health. What number would you assign to your child's current health?
Caregiver's distress
    Parental Stressor ScaleCaregiver37Putting needles in my child
    Parental Concerns ScaleCaregiver23How often do you ask yourself, “Is my child in pain?”
    State-Trait Anxiety Inventory, State Anxiety ScaleCaregiver20Feelings at this moment: I feel strained; I feel calm; I feel upset; I feel comfortable; general feelings: I feel nervous; I feel satisfied with myself; I feel rested; I feel inadequate
    Global rating of stressCaregiver1On a scale from 1 to 7, with 1 representing “not stressful at all” and 7 representing “very stressful,” how stressful have the past 24 hours been for you overall?
    Global rating of healthCaregiver1Imagine a scale from 0 to 100, where 0 represents the worst imaginable health and 100 represents the best imaginable health. What number would you assign to your current health?
Family's distress
    Family Adaptability and Cohesion         Scale IICaregiver30
        Cohesion SubscaleCaregiver16It is easier to discuss problems with people outside the family than with other family members. Our family does things together. Family members know each other's close friends.
        Adaptability SubscaleCaregiver14In our family, it is easy for everyone to express his/her opinion. Family members discuss problems and feel good about the solutions. It is difficult to get a rule changed in our family.
    Global rating of healthCaregiver1Imagine a scale from 0 to 100, where 0 represents the worst imaginable health and 100 represents the best imaginable health. What number would you assign to your family's current health?
  • * Multiple sample items are presented for multi-item measures.