TABLE 1

Patient Demographic and State Characteristics of the NS-CSHCN

Usually or Always Satisfied With Child's Health Services (n = 39 734), %aAchieved All 5 Components of Family-Centered Care (n = 38 902), %b
Achieved outcome59.865.7
Sociodemographic characteristic
    Insurance
        Private (referent)64.171.8
        Public54.8c56.5c
        Other55.8c61.4c
        Uninsured40.0c44.5c
    Age of child at interview
        0–5 y66.6c68.1c
        6–11 y60.0c66.4c
        12–17 y (referent)56.364.0
    Race
        White, non-Hispanic (referent)63.172.3
        Hispanic49.3c47.7c
        Black, non-Hispanic57.0c52.6c
        Other54.9c62.5c
    Family structure
        2-parent family63.4c70.6c
        1-parent or other structure (referent)53.957.3
    Highest education of anyone in household
        Less than high school52.2c45.8c
        High school graduate58.5c59.1c
        More than high school (referent)61.069.6
    Severity of child's functional difficulty
        Usually or always affected44.5c56.3c
        Somewhat or never affected (referent)64.168.4
    Income range
        0–199 % FPL54.4c55.5c
        200–299 % FPL57.1c66.7c
        300–399 % FPL64.8c72.9c
        ≥400 % FPL (referent)66.975.7
State-level characteristics
    Pediatricians per child population
        ≤14.3 pediatricians per 10 000 children (referent)60.966.1
        >14.3 pediatricians per 10 000 children58.2d65.2
    Medicaid spending
        $1762 or less per child (referent)59.265.5
        More than $1762 per child60.8e66.3
    Children in Medicaid per state
        ≤53% (referent)58.765.9
        >53%61.2d65.5
    State Medicaid that is covered by managed care
        ≤67% (referent)57.864.8
        >67%61.4c66.5
  • a This outcome was achieved if the family member responded that he or she was usually or always satisfied with the child's care.

  • b This outcome was achieved if the family member was usually or always satisfied with care on 5 aspects of family-centered care: family feels like a partner in care; the doctor listens to the family; the doctor spends enough time with the family; the doctor is sensitive to family values; and the doctor provides information.

  • c P < .0001.

  • d P < .01.

  • e P < .05.