Effects of CLT Reported in Parental Interviews and Health Professional Interviews

Direct Effects (N = 19 families)Indirect Effects
Emotional support at time of diagnosis and subsequently, including additional discussions about the diagnosisFreeing up of time for clinical staff members to discuss diagnosis, investigations, and management
Increased information provision in relation to available educational, social, and other services and how to make contact with parent support groupsProvision and use of a quiet room, facilitating provision of emotional support for families
Liaison through (1) specific referrals to services and (2) information and support for certification as visually impaired, enabling access to benefitsIncreased support for other health professionals within the department in their clinical roles