TABLE 1.

CAHPS-CCC2.0H Survey Items and Response Option Coding for Measuring Medical Home

CAHPS-CCC2.0H Items: Medical Home DimensionResponse CodeValid Denominator
PDN
 Child has one person whom parent considers to be child's personal doctor or nurse0 pts = NoAll children
100 pts = Yes
Accessible care
 Can get advice by telephone0 pts = NeverChildren who needed/got appointment for routine care or care for an illness/injury
 Gets appointment as soon as wants for routine care25 pts = Sometimes
 Gets appointment as soon as wants for illness/injury75 pts = Usually
 Waits <15 min during appointments100 pts = Always
Family-centered, compassionate careChildren who
 PDN who knows child Have a PDN
  PDN talks with parent about how child is feeling, growing, and behaving0 pts = No Have a behavioral, mental, or health condition lasting 3+ mo
  PDN understands how health condition affects child's day-to-day life100 pts = Yes
  PDN understands how health condition affects family's day-to-day life
 Doctors who communicate well: child's doctors and other health care providers0 pts = Never
  Listen carefully to parent25 pts = Sometimes Have seen doctor in last 6 mo
  Explain things understandably to parent75 pts = Usually
  Respectful of parent100 pts = Always
  Explain things understandably to child
  Spend enough time with child
 Getting needed information: child's doctors and other health care providers0 pts = Never“Have seen doctor in last 6 mo
  Make it easy to discuss questions or concerns25 pts = Sometimes“Parent had questions/concerns
  Give specific information that needed75 pts = Usually
  Answer parents questions100 pts = Always
 Shared decision making: child's doctors and other health care providers0 pts = Never“Have seen doctor in last 6 mo
  Offer choices about child's care25 pts = Sometimes“Had decisions made about care
  Discuss pros and cons of each care option75 pts = Usually
  Ask which care option parent prefers100 pts = Always
  Involves parent as much as s/he wants
Comprehensive careChildren who
 Getting needed care0 pts = Big problem Need to find new doctor
  Finding a PDN with little or no problem50 pts = Small problem Need referral to specialist
  Getting a referral to specialist child needs to see100 pts = No problem Have seen doctor in last 6 mo
  Getting care that parent or doctor believes necessary
  Delays in care as a result of waiting for approval from child's health plan
 Getting specialized services
  Getting special medical equipment needed by child0 pts = Big problem Need specific type of equipment or treatment
  Getting specialized therapy for child50 pts = Small problem
  Getting treatment/counseling for child's developmental, behavioral, or emotional problem100 pts = No problem
 Getting prescription medicines0 pts = Big problem Need prescription medication
  Getting prescribed or refill prescription medication for child50 pts = Small problem
100 pts = No problem
Coordinated careChildren who
 Coordination of care0 pts = No Get care from more than 1 doctor/services
“ Family gets help coordinating child's care among multiple doctors/services100 pts = Yes
 Communication with school/child care“Attend school or child care
  Doctor communicates with school or child care about child's health needs0 pts = No“Needed doctor to contact school or child care
  100 pts = Yes
Culturally sensitive careChildren who
 Language issues0 pts = Always
  Parent has a hard time speaking with or understanding child's doctor because they speak different languages25 pts = Usually Have seen doctor in last 6 mo
  Child has a hard time speaking with or understanding doctor because they speak different languages75 pts = Sometimes Are able to talk
100 pts = Never
 Availability of translation service0 pts = NeverParents and children who need an interpreter
  Interpreter is available for parent if needed25 pts = Sometimes
  Interpreter is available for child if needed75 pts = Usually
  100 pts = Always