APPENDIX

Summary of Key Differences in Measurement of Transition Core Outcome From 2001 to 2005–2006: MCHB Core Outcome 6—YSHCN Receive the Services Necessary to Make Transitions to All Aspects of Adult Life, Including Adult Health Care, Work, and Independence

General changesThe age range was expanded from 13–17 to 12–17 y, and several new questions were added (see below).
Skip pattern from the 2001 survey was eliminated; all respondents were asked each of 4 main components in 2005–2006.
Question about discussion of educational or vocational preparation was eliminated in 2005–2006 survey.
Changes by component
    Doctors have discussed shift to adult provider, if necessaryFor 2005–2006, a new question was added to determine if a shift would be necessary, and a new follow-up question was added to determine if discussions that did not occur would have been helpful.
    Doctors have discussed future health care needs, if necessaryIn 2001, this question asked about discussions of changes in health care needs. For 2005–2006, the question was modified to ask about adult health care needs generally. A new follow-up question was added to determine if discussions that did not occur would have been helpful.
    Doctors have discussed future insurance needs, if necessaryNew questions for 2005–2006.
    The child has usually or always been encouraged to take responsibility for his or her health care needsNew questions for 2005–2006.