TABLE 2

Prevalence of Measures of Access, Satisfaction With Care, and Family Impact Among CSHCN Aged 3 to 17 Years With Parent-Reported ASD, CSHCN Without ASD but With Other EDB Problems, and Other CSHCN: United States, 2005–2006

VariableCSHCN With ASD, % (SE)CSHCN With Other EDB Problems, % (SE)Other CSHCN, % (SE)
Measures of access and unmet need
    Any unmet need for specific health care services30.9 (1.71)25.4 (0.74)12.3 (0.37)
    Any unmet need for family support services19.3 (1.43)10.7 (0.55)1.8 (0.14)
    Child had delayed or foregone care13.8 (1.41)a12.2 (0.54)a6.8 (0.28)
    Child had no usual source of care5.6 (0.75)a,b7.0 (0.50)a5.2 (0.24)b
    Child had no personal physician or nurse5.7 (0.82)a,b7.2 (0.45)a,c6.2 (0.26)b,c
    Difficulty receiving referralsd31.2 (2.89)a27.1 (1.31)a18.1 (0.80)
Measure of satisfaction with care
    Lacks ≥1 component of family centered care49.1 (1.85)44.7 (0.90)30.3 (0.50)
Measures of family impact
    Child's health care caused financial problems for the family38.7 (1.76)30.0 (0.88)13.7 (0.35)
Family needed additional income to cover child's medical expenses34.9 (1.74)25.5 (0.86)12.6 (0.35)
Family members had to reduce or stop employment because of child's condition57.1 (1.78)36.3 (0.95)17.4 (0.39)
Family spent ≥10 hours per week providing or coordinating care for child27.4 (1.65)13.4 (0.71)7.0 (0.29)
Family paid $1000 or more for child's medical care in previous year30.9 (1.63)24.3 (0.81)17.7 (0.37)
  • All of the prevalence estimates in a given row are significantly different from each other (P < .05) unless they share a common footnote letter.

  • a The difference between CSHCN with ASD and CSHCN with other EDB problems was not significant.

  • b The difference between CSHCN with ASD and other CSHCN was not significant.

  • c The difference between CSHCN with other EDB problems and other CSHCN was not significant.

  • d Question was asked only for children who reportedly needed a referral to see any doctors or receive any services.