TABLE 1

Demographics

VariableComparison Group (n = 425)Parents of Children
Who Are Chronically Ill (n = 533)With Asthma (n = 87)Who Are Survivors of Brain Tumor (n = 38)With Diabetes (n = 24)With Duchenne Muscular Dystrophy (n = 57)With Down Syndrome (n = 100)With End-Stage Renal Disease (n = 18)With Metabolic Disease (n = 117)With Profound Complex Handicaps (n = 12)With Sickle Cell Disease (n = 59)With Spina Bifida (n = 21)
Gender (female), n (%)354 (83)453 (85)75 (86)34 (90)21 (88)42 (74)87 (87)18 (100)89 (76)9 (69)53 (88)19 (91)
Married/partner, n (%)379 (89)470 (88)73 (84)32 (84)23 (96)56 (98)a98 (98)a13 (72)109 (93)12 (92)30 (51)a17 (81)
Age, mean (SD), y43.7 (5.5)42.0 (6.4)b42.2 (6.7)45.8 (5.5)b45.0 (6.6)44.0 (5.6)41.6 (4.9)b42.9 (3.5)41.3 (7.0)b43.4 (5.2)38.2 (7.3)b41.0 (6.4)b
Educational level, n (%)
    Lower86 (20)140 (26)a15 (17)9 (24)7 (29)15 (26)20 (20)7 (39)a29 (25)3 (25)30 (50)a5 (24)
    Intermediate163 (38)219 (41)40 (45)17 (45)8 (33)20 (35)40 (40)9 (50)50 (43)3 (25)22 (37)10 (48)
    Higher176 (41)174 (33)32 (37)12 (31)9 (38)22 (39)40 (40)2 (11)38 (32)6 (50)8 (13)6 (28)
Children per family, mean (SD), n2.2 (0.8)2.2 (0.9)2.2 (0.9)2.0 (1.0)2.1 (0.7)2.2 (1.0)2.5 (0.9)b2.2 (0.7)2.2 (0.9)2.3 (1.0)2.3 (1.2)2.5 (0.8)
Age chronically ill children, mean (SD), y10.0 (4.4)10.7 (4.3)14.6 (4.4)12.6 (4.4)11.6 (4.0)7.3 (1.4)13.0 (4.1)8.7 (4.4)9.7 (4.4)9.2 (4.5)9.9 (4.8)
Time since diagnosis, mean (SD), y7.8 (4.3)8.9 (5.0)8.1 (3.8)8.0 (5.5)8.4 (4.3)7.6 (1.3)10.3 (5.3)6.1 (4.0)9.8 (3.9)7.5 (4.4)9.5 (5.1)
  • a P < .1 for disease group in comparison with reference group (χ2).

  • b P < .1 for disease group in comparison with the reference group (t test).