TABLE 1

Survey Items Included in the Medical Homeness Scale

CAHPS Survey itemsResponse SetAssociated AAP Medical Home Concepts
Does child's personal doctor or nurse understand how child's condition affects his or her day-to-day life?1, never; 2, sometimes; 3, usually; 4, alwaysFamily centered, compassionate
In the last 6 months, when your child went to his or her personal doctor or nurse's office or clinic, how often did the doctor or nurse talk with you about how your child is feeling, growing, and behaving?1, never; 2, sometimes; 3, usually; 4, alwaysFamily centered, compassionate, comprehensive
In the last 6 months, how often did your child's doctors or other health providers give you support about the care you are providing for your child?1, never; 2, sometimes; 3, usually; 4, alwaysFamily centered, compassionate
In the last 6 months, how often did your child's doctors or other health providers involve you as much as you wanted in these decisions? (If decisions had been made about child's health care)1, never; 2, sometimes; 3, usually; 4, alwaysFamily centered, compassionate, coordinated
In the last 6 months, how much of a problem, if any, was getting your child's doctors or other health providers to listen to your concerns about the best way to manage your child's medical or health problems?1, big problem; 2, small problem; 3, not a problemFamily centered, compassionate, comprehensive
In the last 6 months, how much of a problem, if any, was getting your child's doctors or other health providers to follow up on concerns about your child's medical or health problems?1, big problem; 2, small problem; 3, not a problemFamily centered, compassionate, comprehensive
Do you get the information you need from your child's doctors and other health providers about your child's medical or health conditions?1, never; 2, sometimes; 3, usually; 4, alwaysFamily centered, comprehensive
In the last 6 months (not counting times you went to an emergency room), how much of a problem, if any, was it to get care for your child that you or a doctor believed necessary?1, big problem; 2, small problem; 3, not a problemAccessible, comprehensive
How often child gets care in a timely manner: routine and sick care as soon as wanted, helped over the phone, waiting room <15 minutes (CAHPS 2.0 composite)1, never; 2, sometimes; 3, usually; 4, alwaysAccessible, comprehensive
Doctor communication: spends enough time, listens carefully, respectful, explains clearly to parent and child (CAHPS 2.0 composite)1, never; 2, sometimes; 3, usually; 4, alwaysFamily centered, compassionate, culturally effective
Office staff are helpful, treat parent and child with courtesy and respect (CAHPS 2.0 composite)1, never; 2, sometimes; 3, usually; 4, alwaysFamily centered, compassionate, culturally effective
Does anyone from your child's health plan, doctor's office or clinic help you to coordinate your child's care among these different providers and services? (If child has >1 provider)a1, never; 2, sometimes; 3, usually; 4, alwaysCoordinated, family centered
In the last 6 months, how much of a problem, if any, was getting your child's doctors and/or other health providers to help your child's school or day care understand these needs? (If child has special needs at school or day care)a1, big problem; 2, small problem; 3, not a problemComprehensive, coordinated, compassionate
In the last 6 months, how much of a problem, if any, was it to get a referral to a specialist that your child needed to see?a1, big problem; 2, small problem; 3, not a problemAccessible, comprehensive, coordinated
In the last 6 months, how much of a problem, if any, was it to get this treatment or counseling for your child?a1, big problem; 2, small problem; 3, not a problemComprehensive
  • a CYSHCN only.