TABLE 2

Cross-sectional Demographic and Clinical Profile of Patients With SB and Distribution of Surgical Procedures and Health Outcomes; From the NSBPR, 2009–2013 (n = 3801 Patients With Complete Surgical Procedure Data)

VariableOverall, n (%)Myelomeningocele, n (%)Nonmyelomeningocele, n (%)
Age distribution, y
 <51165 (30.7)931 (29.5)234 (36.5)
 5–9780 (20.5)623 (19.7)157 (24.5)
 10–14709 (18.7)599 (19.0)110 (17.1)
 15–19603 (15.9)511 (16.2)92 (14.3)
 20–24221 (5.8)194 (6.1)27 (4.1)
 ≥25323 (8.5)301 (9.5)22 (3.4)
 Total3801 (100)3159 (83.1)642 (16.9)
Sex
 Female1992 (52.4)1640 (51.9)352 (54.8)
 Male1809 (47.6)1519 (48.1)290 (45.2)
 Total3801 (100)3159 (83.1)642 (16.9)
Race and/or ethnicity
 Non-Hispanic white2492 (65.6)2107 (66.7)385 (60.0)
 Non-Hispanic African American295 (7.8)265 (8.4)30 (4.7)
 Hispanic or Latino758 (19.9)613 (19.4)145 (22.6)
 Other245 (6.5)163 (5.2)82 (12.8)
 Refused or unknown11 (0.3)11 (0.4)0 (0.0)
 Total3801 (100)3159 (83.1)642 (16.9)
Type and No. surgical procedures reported in all visits
 Neurologic11 133 (58.9)10 269 (59.5)864 (53.1)
 Orthopedic2936 (15.5)2666 (15.4)270 (16.6)
 Urologic1823 (9.7)1651 (9.6)172 (10.6)
 Gastrointestinal1076 (5.7)942 (5.5)134 (8.2)
 Skin989 (5.2)890 (5.2)99 (6.1)
 Other934 (4.9)847 (4.9)87 (5.4)
 Total18 891 (100)17 265 (91.4)1626 (8.6)
Prevalence of key outcomesa status reported at last visit
 Fecal incontinence1453 (59.4)1091 (63.0)362 (43.0)
 Urinary incontinence1482 (58.6)1106 (62.5)376 (40.8)
 Skin breakdown754 (16.2)692 (18.3)62 (7.0)
 Non ambulator1204 (28.5)1171 (34.3)33 (4.1)
  • a We report negative outcomes in this section of the table to facilitate risk comparisons.