TABLE 2

Parents' Priorities for Pediatric Palliative Care

Honest and complete information“What we cannot handle is not knowing what is going on.”
Ready access to staff“Set a regular time for office hours at the bedside.”
Communication and care coordination“There were too many doctors explaining things.”
Emotional expression and support by staff“People need to feel that people really care, not that it's just a job.”
Preservation of the integrity of the parent-child relationship“Show more sincere compassion for the parents' and child's needs.”
Faith“Prayer and the services of my rabbi.”