TABLE 1

Parent Perspectives Questionnaire: Open-Ended Questions

What was most helpful to you in getting through the time at the end of your child's life?
What was least helpful to you in getting through the time at the end of your child's life?
How can hospital staff improve their communication with parents at this difficult time?
What advice do you have for hospital staff members in helping parents during this difficult time?
What advice do you have for other parents who are facing a similar situation?
  • The Parent Perspectives Questionnaire includes the 5 open-ended questions listed above. The analysis for this article was based on parental responses to the first 4 questions. The fifth question was deemed significantly different in nature and will be analyzed separately.