Misleading and Good-News Content Code Names
| Good-news content |
| Screening: CF-carrier positive |
| Screening: CF-carrier positive possible |
| Screening: SCH-carrier positive |
| Screening: SCH-carrier positive possible |
| Screening: false-positive screening likely |
| Infant is healthy now |
| Infant is normal now |
| Infant is growing/developing normally now |
| Infant is a CF carrier |
| Infant may be a CF carrier |
| Infant does not have CF disease |
| Infant is an SCH carrier |
| Infant may be an SCH carrier |
| Infant makes normal hemoglobin |
| Infant does not have SCH disease |
| Infant has single allele only (any) |
| Infant will be healthy |
| Infant will never get the disease |
| Infant may never get the disease |
| Nothing will change infant’s health status |
| Infant will be normal |
| Infant will grow or develop normally |
| Infant will have normal performance (not otherwise specified) |
| Infant will have normal social interaction |
| Infant will be normal emotionally |
| Infant will have normal play and physical performance |
| Infant will be normal in school |
| Infant will have normal mental performance (not otherwise specified) |
| Nothing will change infant’s genetic status |
| No treatment is needed |
| No nutritional supplement is needed |
| No monitoring is needed |
| No growth monitoring is needed |
| No developmental monitoring is needed |
| No blood test is needed |
| You’ve done a good job thus far |
| Feed infant normally |
| Treat infant normally (do normal things) |
| Keep doing whatever you’re doing |
| Misleading content |
| There is a screening result (not otherwise specified) |
| Screening: positive (not otherwise specified) |
| Screening: CF positive |
| Screening: CF positive possible |
| Screening: SCH positive |
| Screening: SCH positive possible |
| Screening: result suspicious |
| Screening: result concerning |
| Potential newborn screening test result disease |
| Infant has CF |
| Infant may have CF |
| Infant has SCH |
| Infant may have SCH |
| Infant makes sickle hemoglobin |
| Purpose of diagnostic testing: to provide early treatment |
| Purpose of diagnostic testing: to provide treatment when most effective |
| Infant needs treatment |
| Infant may need treatment |
| Infant needs nutritional supplement |
| Purpose of diagnostic testing: so that infant will know status upon adulthood |
| Purpose of diagnostic testing: so infant will know status when considering having children |
| Infant may have a second allele |
| Infant may be found to have disease |
| Purpose of diagnostic testing: ensure no second mutation |
| Purpose of diagnostic testing: identify early |
| Purpose of diagnostic testing: identify before symptoms |
| May need nutritional supplement |
| Monitoring |
| Infant needs monitoring (not otherwise specified) |
| Infant may need monitoring (not otherwise specified) |
| Infant needs growth monitoring |
| Infant may need growth monitoring |
| Infant needs developmental monitoring |
| Infant may need developmental monitoring |
| Infant needs blood tests |
| Infant may need blood tests |
| Infant needs to see a specialist as an infant |
| Infant may need to see a specialist as an infant |
| We need to do whatever is best for infant |
| We need to think about what is best for infant |
| Infant will develop problems if low oxygen |
| Infant may develop problems if low oxygen |
| Infant should avoid low oxygen |
| Infant will develop problems during extreme exercise |
| Infant may develop problems during extreme exercise |
| Infant should avoid extreme exercise |
| Infant will develop problems at high altitude |
| Infant may develop problems at high altitude |
| Infant should avoid high altitude |
| Infant may develop problems in military training |
| Infant will develop problems in military training |
| Infant should avoid military training |
| You should watch or keep an eye on infant (not otherwise specified) |
| Call doctor if problems develop: CF or SCH |
| Specified CF or SCH: problems to call doctor about |