TABLE 1.

Presenting Symptoms for 138 Patients With FOP

Initial Symptom NotedNo. of Patients (%) (N = 138)
Swellings or tumors91 (66)
    On head, neck, or back77
    On shoulders7
    Elsewhere7
Stiffness35 (25)
    Of neck or back27
    Elsewhere8
Bone formation after trauma*17 (12)
Other (pain, limp, or fever)5 (4)
  • The total number presented is greater than 138 because some individuals described >1 presenting symptom.

  • * Trauma includes immunizations.