TABLE 1.

Sample Demographic Characteristics (n = 51)

Variable
Age at enrollment, y
    Mean (SD)7.4 (5.1)
    Median (range)7.1 (0.4–17.4)
Gender, % male57
Race/ethnicity, %
    White67
    Nonwhite33
Family income, %
    <$19 99947
    $20 000–$39 99927
    $40 000–$60 00013
    >60 00013
Maternal education, %
    <High school diploma17
    ≥High school diploma83
Parental marital status, %
    Married/cohabiting65
    Other35
Geographic location, %
    Metropolitan county57
    Rural adjacent counties43
Number of conditions, %
    129
    224
    325
    414
    ≥58
Diagnostic group (ICD-9-CM codes), %
    Mental disorders (290–319)10
    Diseases of nervous system/sense organs (320–389)8
    Congenital anomalies (740–759)18
    Conditions originating in perinatal period (760–779)27
    Symptoms, signs, ill-defined, or organ-specific conditions (001–289, 390–739, 780–799, 800–999)37
Physician medical severity rating, %
    Severe24
    Not severe76
Dependent on medical technology, %18
Child functional level, %*
    Above the average functional level of other CSHCN37
    Below the average functional level of other CSHCN63
  • ICD-9-CM indicates International Classification of Diseases, Ninth Revision, Clinical Modification.

  • * Compared with a mean of 86.8 identified previously on the Functional Status II–Revised.30