Age-Based Adherence Definitions and Rates by Individual Guidelines for Down Syndrome in 466 Visits to NCH

Adherence DefinitionBaseline: July 2015 to June 2016Postintervention: July 2016 to October 2017P
N = 167N = 299
EchocardiogramOnce ever for ages 0–12 mo62/6694107/10899.05
Genetics visitOnce ever for ages 0–12 mo37/665697/10890<.001
HemoglobinOnce at 0–6 mo with CBC then annually88/16751206/29969<.001
ThyrotropinAnnually within last y for all children >6 mo72/11861166/22673.02
Sleep studyOnce for all children >4 y33/655178/11966.05