TABLE 1.

Sample Items From the PIS

Partnership
 “How much did you participate in your child’s care?”
Coordination of care
 “Did one doctor or nurse say one thing and then another say something quite different?”
Information to parents
 “When you had important questions to ask the doctors, did you get answers you could understand?”
Information to the child
 “Was information discussed in a way your child could understand?”
Physical comfort
 “Was the pain your child experienced more than you were told it would be?”
Confidence and trust
 “Did you have confidence and trust in the doctors caring for your child?”
Continuity and transition
 “Did someone on the hospital staff tell you what you needed to know to care for your child at home?”