Sample Items From the PIS
| Partnership |
| “How much did you participate in your child’s care?” |
| Coordination of care |
| “Did one doctor or nurse say one thing and then another say something quite different?” |
| Information to parents |
| “When you had important questions to ask the doctors, did you get answers you could understand?” |
| Information to the child |
| “Was information discussed in a way your child could understand?” |
| Physical comfort |
| “Was the pain your child experienced more than you were told it would be?” |
| Confidence and trust |
| “Did you have confidence and trust in the doctors caring for your child?” |
| Continuity and transition |
| “Did someone on the hospital staff tell you what you needed to know to care for your child at home?” |