TABLE 4

Interaction Between Providers and Parents After an End-Of-Life Scenario

Quotes From Evaluators or Examples of Participants’ Interactions Reported by Evaluators
Examples of Behaviors To AdoptExamples of Behaviors To Avoid
Positive interactions with parents after the resuscitation
 Clearly state the child died“She is dead, I am sorry.”“He just said it was tragic but did not mention death once.”
 Avoid medical jargon related to death“We tried everything we could to save her life, but it didn’t work. She is dead.”“She was born without a heart; it never came back.”
 Tell parents they could not have prevented the death“There is nothing you could have done to prevent this.”“She told the parents it was a shame they did not come to the hospital earlier.”
 Listen and provide moments of silence“She spoke slowly, listened; there were many pauses.”“He just wouldn’t stop speaking. Parents couldn’t get a word in.”
Provide proximity
 Provider-parent“The doctor was sitting on a chair, at the same level as the mom in her bed.”“She was standing up, in the corner, with no eye contact.”
 Provider-infant“He took the baby in his arms and you could tell he cared.”“He just left the baby naked on the table when he went to speak to the parents.”
 Parent-infant“She placed Beatrice in the parents’ arms, placed all 4 hands together, after telling them she would.”“She spoke to Dad alone, then went to speak to Mom, and the baby was alone on the table, dead. Everybody was alone.”
Be knowledgeable about what happens after death“He knew what happened to the body, the practical aspects after death.”“He had no idea about the body and the next steps: did not inspire trust.”
Offer “formal” support“She said she would call the psychologist.”“She just left the room.”
Offering future support“I will always be there in the future if you have questions.”“She ended abruptly, did not offer follow-up.”