TABLE 1

Questions Posed to Parents of Children Who Were Hospitalized Used to Estimate the Cost Burden of the Hospitalization and Markers of Financial and Social Hardships

QuestionResponse Options
Have you or any household member missed income from wages and/or tips during this hospitalization?Yes or no
Cost burden items
 How much in wages and/or tips?Free response ($)
 How much money has been spent on travel or parking at the hospital?Free response ($)
 How much money has been spent on meals at the hospital?Free response ($)
 How much money was spent on additional child care?Free response ($)
 Besides missed income or lost sick leave time, travel or parking, meals, and additional child care, were there any other costs that your family experienced because of this hospitalization?Free response ($)
Financial hardships
 At the end of the mo, do you generally end up with…Some money left over or just enough money to make ends meet versus not enough to make ends meet
 During the past 12 mo, was there a time when you wanted to find work but were not able to do so?Yes or no
 During the past 12 mo, has your household not paid the full amount of any of the utility bills for electricity, heating, or water?Yes or no
 Do you or your spouse or partner own your home?Yes or no
 Do you or your spouse or partner own a car, truck, or van?Yes or no
 During the past 12 mo, have you borrowed money from friends or relatives because of financial circumstances or difficulties?Yes or no
 During the past 12 mo, have you moved in with other people because of financial circumstances or difficulties?Yes or no
Social hardships
 If you or your household had a problem with which you needed help (eg, child care, sickness, or moving), how much help would you expect to get from family or friends living nearby (in the same general region or city)?All, most, or little of the help needed versus no help or no friends or family nearby
 If you need financial help during the next year, do you think you can count on people (family, friends, or a bank or any source) to loan you $1000?Yes or no
  • Source: authors’ contributions as well as established literature.1921