TABLE 4

T1 Cross-Sectional and T2 Longitudinal Maternal Psychosocial Response

Time 1aTime 2a
Mean Scores (SD)t test PMean Scores (SD)t test P
FPScreen NegativeFPScreen Negative
Anxiety31.23 (10.30)32.39 (8.94).1231.48 (9.03)32.74 (10.23).41
Distressb 55.35 (9.90)56.03 (10.67).5253.85 (10.46)53.79 (11.21).97
Vulnerability4.79 (3.49)5.53 (4.16).264.59 (3.60)5.23 (3.68).22
Uncertaintyc8.04 (2.41)8.61 (2.64).03*7.57 (2.37)8.19 (2.50).051
Worryd10.81 (2.51)10.71 (2.27).002**10.73 (2.30)10.39 (1.40).004**
Worry_revised9.49 (2.42)9.66 (2.08).3149.46 (2.27)9.36 (1.26).41
  • t tests performed on log-transformed scale data, and descriptive statistics reported on raw data.

  • a T1 participants completed survey when infants were 2 mo of age; T2 survey completed 1 y later.

  • b BSI, t scores reported; measured 15 items to gauge general distress, using the depression and obsessive behaviors subscales and l4 additional items to generate Global Severity Index.33,3739

  • c PPUS, eliminated items related to medical treatment, attitudes toward health care providers, and items not specifically about uncertainty in health and illness; revised items to be about infants and to be CF-specific.

  • d MWS, changed “health condition” to “health,” removed 4 items specific to being sick/using medication, and added 3 items to suit context of genetics; Mann-Whitney U test performed due to the nonparametric nature of data; MWS means reported for consistency with other measures; MWS_revised, 9-item version with the item re: worry about children’s choices about having children removed.

  • * P < .05.

  • ** P < .019.