Optimal Data Set for Surveillance of Screening for CCHD

Minimal core data set
 Age (hours) at screen
 Pulse oximetry saturation levels for each screen (preductal and postductal)
 Screening outcome (pass/fail)
 Type of CCHD detected, if any
 Demographic characteristics as defined by newborn screening program
Additional elements
 Setting (newborn nursery, NICU, home, other)
 Type of non-CCHD condition detected, if any
 Results of echocardiogram, if performed
 Prenatal diagnosis status
 Long-term outcomes