TABLE 1

The 2009/2010 NS-CSHCN Transition Core Outcome: Constructions and Questions

ConstructsQuestions
The child receives anticipatory guidance in the transition to adulthood
Doctors have discussed shift to adult provider, if necessaryHave they (your child’s doctors or other health care providers) talked with you about having (child) eventually see doctors or other health care providers who treat adults? (only asked if any of child’s doctors or other providers treat only children) (yes/no) (if no) Would a discussion about doctors who treat adults have been helpful to you?
Doctors have discussed future health care needs, if necessaryHave (child’s) doctors or other health care providers talked with you or (your child) about his or her health care needs as he or she becomes an adult? (yes/no) (if no) Would a discussion about (child’s) health care needs have been helpful?
Doctors have discussed future insurance needs, if necessaryEligibility for health insurance often changes as children reach adulthood. Has anyone discussed with you how to obtain or keep some type of health insurance coverage as (child) becomes an adult? (yes/no) (if no) Would a discussion about health insurance have been helpful to you?
Caretakers report that the child has usually or always been encouraged to take responsibility for his or her health care needsHow often do (child’s) doctors or other health care providers encourage (him or her) to take responsibility for (his or her) health care needs, such as taking medication, understanding (his or her) health, or following medical advice? (never sometimes, usually, always)