TABLE 1

Patient and Parent/Caregiver Informationa,b

nEdmontonnOttawaTotal
Patient
 Child/youth age, mean (SD)7048.7 (5.1)2229.2 (5.1)8.8 (5.1)
 Gender male, n (%)703311 (44.2)222104 (46.8)415 (44.9)
 Overall health status697222919
  Excellent130 (18.7)40 (18.0)170 (18.5)
  Very good264 (37.9)89 (40.1)353 (38.4)
  Good217 (31.1)73 (32.9)290 (31.6)
  Fair73 (10.5)16 (7.2)89 (9.7)
  Poor13 (1.9)4 (1.8)17 (1.8)
 Time since diagnosis687217904
  0–3 mo118 (17.2)36 (16.6)154 (17.0)
  3–6 mo63 (9.2)22 (10.1)85 (9.4)
  6–12 mo100 (14.6)32 (14.7)132 (14.6)
  >12 mo406 (59.1)127 (58.5)533 (59.0)
 If child/youth has ever used CAM704222926
  Yes (%)503 (71.4)****94 (42.3)597 (64.5)
 Reasons for not using CAM for child*201128329
  Don’t know enough about CAM115 (57.2)*59 (46.1)174 (52.9)
  Don’t think CAM is necessary36 (17.9)28 (21.9)64 (19.5)
  Don’t believe in CAM5 (2.5)7 (5.5)12 (3.6)
  CAM not available for me4 (2.0)3 (2.3)7 (2.1)
  Can’t afford CAM7 (3.5)6 (4.7)13 (4.0)
  Concerned about safety of CAM10 (5.0)12 (9.4)22 (6.7)
  Doctor has warned against using it5 (2.5)1 (0.8)6 (1.8)
  Worried about side effects from mixing with other treatments27 (13.4)14 (10.9)41 (12.5)
  Otherc37 (18.4)34 (26.6)71 (21.6)
Respondent
 If respondent had ever used CAM695218913
  Yes503 (72.4)****130 (59.6)633 (69.3)
 CAM coverage by a private health insurance plan691220911
  Yes282 (40.8)110 (50.0)392 (43.0)
  No236 (34.2)66 (30.0)302 (33.2)
  Not sure173 (25.0)44 (20.0)217 (23.8)
 Overall health status697218915
  Excellent223 (32.0)85 (39.0)308 (33.7)
  Very good315 (45.2)94 (43.1)409 (44.7)
  Good143 (20.5)31 (14.2)174 (19.0)
  Fair13 (1.9)5 (2.3)18 (2.0)
  Poor3 (0.4)3 (1.4)6 (0.7)
 Adverse events reported6614
  Minor43 (65.2)12(85.7)
  Moderate17 (25.8)2 (14.7)
  Severe6 (9.1)0
  • n, number with valid responses.

  • a Statsistically significant differences are for between-site comparisons.

  • b Multiple responses allowed.

  • c No current need, never heard of it, never thought of it, never offered.

  • * P < .050.

  • **** P < .0001