TABLE 1

Recommended Schedule of Follow-up for Infants With CDH

Before Discharge1–3 mo After Birth4–6 mo After Birth9–12 mo After Birth15–18 mo After BirthAnnual Through 16 y
Weight, length, occipital-frontal circumferenceXXXXXX
Chest radiographXIf patchedIf patchedIf patchedIf patchedIf patched
Pulmonary function testingIf indicatedIf indicatedIf indicated
Childhood immunizationsAs indicated throughout childhoodXXXXX
RSV prophylaxisRSV season during first 2 years after birth (if evidence of chronic lung disease)XXXXX
Echocardiogram and cardiology follow-upXIf previously abnormal or if on supplemental oxygenIf previously abnormal or if on supplemental oxygenIf previously abnormal or if on supplemental oxygenIf previously abnormal or if on supplemental oxygenIf previously abnormal or if on supplemental oxygen
Head computed tomography or MRIIf (1) abnormal finding on head ultrasound; (2) seizures/abnormal neurologic findingsa; or (3) ECMO or patch repairAs indicatedAs indicatedAs indicatedAs indicatedAs indicated
Hearing evaluation44Auditory brainstem evoked response or otoacoustic emissions screenXXXXEvery 6 mo to age 3 y, then annually to age 5 y
Developmental screening evaluationXXXXAnnually to age 5 y
Neurodevelopmental evaluationXXAnnually to age 5 y
Assessment for oral feeding problemsXXIf oral feeding problemsIf oral feeding problemsIf oral feeding problemsIf oral feeding problems
Upper gastrointestinal study, pH probe, and/or gastric scintiscanConsider for all patientsIf symptomsIf symptomsConsider for all patientsIf symptomsIf symptoms
EsophagoscopyIf symptomsIf symptomsIf symptoms or if abnormal gastrointestinal evaluationsIf symptomsIf symptoms
Scoliosis and chest wall deformity screening (physical examination, chest radiograph, and/or computed tomography of the chest)XX
  • The neurosensory tests performed and frequency of surveillance may differ among infants with CDH because of variability in neurologic, developmental, and physiologic impairments. Follow-up should be tailored to each infant. RSV indicates respiratory syncytial virus.

  • a Muscle weakness, hypotonia, hypertonia, or other abnormal neurologic sign or symptom.