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Discover Pediatric Collections on COVID-19 and Racism and Its Effects on Pediatric Health

American Academy of Pediatrics
Special Article

Classification System for the Sudden Unexpected Infant Death Case Registry and its Application

Carrie K. Shapiro-Mendoza, Lena Camperlengo, Rebecca Ludvigsen, Carri Cottengim, Robert N. Anderson, Thomas Andrew, Theresa Covington, Fern R. Hauck, James Kemp and Marian MacDorman
Pediatrics July 2014, 134 (1) e210-e219; DOI: https://doi.org/10.1542/peds.2014-0180
Carrie K. Shapiro-Mendoza
aDivision of Reproductive Health, Centers for Disease Control and Prevention, Atlanta, Georgia;
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Lena Camperlengo
aDivision of Reproductive Health, Centers for Disease Control and Prevention, Atlanta, Georgia;
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Rebecca Ludvigsen
bOak Ridge Institute for Science and Education (ORISE) Research Participant Program, Division of Reproductive Health, Centers for Disease Control and Prevention, Atlanta, Georgia;
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Carri Cottengim
cDB Consulting Group, Inc., Atlanta, Georgia;
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Robert N. Anderson
dDivision of Vital Statistics, National Center for Health Statistics, Centers for Disease Control and Prevention, Hyattsville, Maryland;
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Thomas Andrew
eOffice of Chief Medical Examiner, State of New Hampshire, New Hampshire;
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Theresa Covington
fNational Center for Child Death Review, Michigan Public Health Institute, Okemos, Michigan;
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Fern R. Hauck
gDepartments of Family Medicine and Public Health Sciences, University of Virginia, Charlottesville, Virginia; and
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James Kemp
hDivision of Pediatric Allergy, Immunology and Pulmonary Medicine, Washington University, St Louis, Missouri
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Marian MacDorman
dDivision of Vital Statistics, National Center for Health Statistics, Centers for Disease Control and Prevention, Hyattsville, Maryland;
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Abstract

Sudden unexpected infant deaths (SUID) accounted for 1 in 3 postneonatal deaths in 2010. Sudden infant death syndrome and accidental sleep-related suffocation are among the most frequently reported types of SUID. The causes of these SUID usually are not obvious before a medico-legal investigation and may remain unexplained even after investigation. Lack of consistent investigation practices and an autopsy marker make it difficult to distinguish sudden infant death syndrome from other SUID. Standardized categories might assist in differentiating SUID subtypes and allow for more accurate monitoring of the magnitude of SUID, as well as an enhanced ability to characterize the highest risk groups. To capture information about the extent to which cases are thoroughly investigated and how factors like unsafe sleep may contribute to deaths, CDC created a multistate SUID Case Registry in 2009. As part of the registry, the Centers for Disease Control and Prevention developed a classification system that recognizes the uncertainty about how suffocation or asphyxiation may contribute to death and that accounts for unknown and incomplete information about the death scene and autopsy. This report describes the classification system, including its definitions and decision-making algorithm, and applies the system to 436 US SUID cases that occurred in 2011 and were reported to the registry. These categories, although not replacing official cause-of-death determinations, allow local and state programs to track SUID subtypes, creating a valuable tool to identify gaps in investigation and inform SUID reduction strategies.

  • sudden infant death syndrome
  • sudden unexpected infant death
  • infant mortality
  • accidental suffocation
  • classification
  • child death review
  • surveillance
  • Accepted April 7, 2014.
  • Copyright © 2014 by the American Academy of Pediatrics

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Pediatrics
Vol. 134, Issue 1
1 Jul 2014
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Classification System for the Sudden Unexpected Infant Death Case Registry and its Application
Carrie K. Shapiro-Mendoza, Lena Camperlengo, Rebecca Ludvigsen, Carri Cottengim, Robert N. Anderson, Thomas Andrew, Theresa Covington, Fern R. Hauck, James Kemp, Marian MacDorman
Pediatrics Jul 2014, 134 (1) e210-e219; DOI: 10.1542/peds.2014-0180

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Classification System for the Sudden Unexpected Infant Death Case Registry and its Application
Carrie K. Shapiro-Mendoza, Lena Camperlengo, Rebecca Ludvigsen, Carri Cottengim, Robert N. Anderson, Thomas Andrew, Theresa Covington, Fern R. Hauck, James Kemp, Marian MacDorman
Pediatrics Jul 2014, 134 (1) e210-e219; DOI: 10.1542/peds.2014-0180
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    • Abstract
    • Flow of Data From Case Identification to Categorization
    • Developing Standard Definitions for SUID Case Registry Surveillance
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  • Variations in Cause-of-Death Determination for Sudden Unexpected Infant Deaths
  • The Sudden Death in the Young Case Registry: Collaborating to Understand and Reduce Mortality
  • SIDS and Other Sleep-Related Infant Deaths: Evidence Base for 2016 Updated Recommendations for a Safe Infant Sleeping Environment
  • SIDS and Other Sleep-Related Infant Deaths: Evidence Base for 2016 Updated Recommendations for a Safe Infant Sleeping Environment
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  • Public Health
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    • SIDS

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