TABLE 1

Distribution of Selected Demographic, Clinical, and Insurance Characteristics Among Participants (N = 2054), Ages Newborn to <22 Years: NSBPR, 2009–2012

Characteristicn (%)
Age group, y
 <2373 (18.2)
 2 to <5346 (16.8)
 5 to <10454 (22.1)
 10 to <13252 (12.3)
 13 to <18419 (20.4)
 18 to <22210 (10.2)
Gender
 Male979 (47.7)
 Female1075 (52.3)
Race/ethnicitya
 Hispanic509 (24.8)
 Non-Hispanic black159 (7.7)
 Other1384 (67.4)
Health insuranceb
 Any private963 (46.9)
 No private1090 (53.1)
Functional level of lesion
 Thoracic289 (14.1)
 High-lumbar201 (9.8)
 Midlumbar550 (26.8)
 Low-lumbar379 (18.5)
 Sacral635 (30.9)
Spina bifida type
 Myelomeningocele1657 (80.7)
 Nonmyelomeningocele397 (19.3)
Bowel continence, age 5+c569 (42.6)
Bladder continence, age 5+c507 (38.0)
Mobility status, age 2+d
 CA920 (55.3)
 Household ambulatory137 (8.2)
 Nonfunctional ambulatory139 (8.4)
 Nonambulatory468 (28.1)
Pressure sore283 (13.8)
Care center
 Alabama381 (18.5)
 California271 (13.2)
 Colorado228 (11.1)
 Connecticut74 (3.6)
 Indiana242 (11.8)
 Massachusetts72 (3.5)
 Ohio246 (12.0)
 Oregon172 (8.4)
 Washington196 (9.5)
 Wisconsin172 (8.4)