TABLE 3

Support of Various Forms of Parental Consent for Storage of NBS Samples for Anonymous Research

Q: “Where newborn screening programs store dried blood spots as a resource for future anonymous medical research, I think...”
Total
n%
…parents should be required to have their infant's dried blood spot stored (n = 56)
 Agreea2952
 Neutral47
 Disagreeb2341
…parents should be strongly encouraged to have their infant's dried blood spot stored (n = 57)
 Agreea4477
 Neutral712
 Disagreeb611
…parents should be able to choose without pressure whether they want their infant's dried blood spot stored (n = 56)
 Agreea4377
 Neutral611
 Disagreeb713
…dried blood spots should not be stored (n = 55)
 Agreea815
 Neutral59
 Disagreeb4276
  • a Respondents checking “strongly agree” and “agree” to these questions were included in this category.

  • b Respondents checking “strongly disagree” and “disagree” to these questions were included in this category.