TABLE 2

Support of Storage and Secondary Uses of NBS Samples

Q: “I think that it is appropriate to keep dried blood spots in a storage facility...…”
n%
…to allow the people who run the newborn screening program to make sure it is working properly (ie, quality control) (n = 58)
 Agreea5798
 Neutral12
 Disagreeb00
… to be available for physicians or families in case they need to check on a child’s diagnosis (n = 58)
 Agreea5798
 Neutral12
 Disagreeb00
… to be available as a resource for future anonymous medical research (when approved by a research ethics board) (n = 58)
 Agreea5391
 Neutral23
 Disagreeb35
… to be available as a resource for law enforcement purposes (with a court order) (n = 57)
 Agreea3154
 Neutral35
 Disagreeb2340
… to be available as a resource for unspecified future uses (n = 58)
 Agreea2950
 Neutral1017
 Disagreeb1933
  • a Respondents checking “strongly agree” and “agree” were included in this category.

  • b Respondents checking “strongly disagree” and “disagree” were included in this category.