TABLE 20

Key Action Statement 5: Clinicians should educate parents of infants with an IH about the condition, including the expected natural history, and its potential for causing complications or disfigurement (grade X, strong recommendation).

Aggregate Evidence QualityGrade X
BenefitsPromotes parent satisfaction and understanding, may reduce medication errors, may improve clinical outcomes
Risks, harm, costMay increase parental anxiety because of the need to administer medication; time spent in education, may increase health care costs because of the need for follow-up visits
Benefit-harm assessmentBenefits outweigh harms
Intentional vaguenessNone
Role of parental preferencesEssential; shared decision-making regarding the need for treatment is vital
ExclusionsNone
StrengthStrong recommendation
Key references21,22,154