TABLE 1

Selected Advocacy/Parental Support Groups and Resources

Adult Congenital Heart Association: http://www.achaheart.org/
Anthony Bates Foundation: http://www.anthonybates.org
Got Transition/Center for Health Care Transition: http://www.gottransition.org/
It’s My Heart: http://www.childrensheartfoundation.org/publications/its-my-heart
Little Hearts: https://www.littlehearts.org
Linked By Heart: http://linked-by-heart.org/
Mended Little Hearts: http://www.mendedlittlehearts.org/
Nick of Time: http://nickoftimefoundation.org
Parent Heart Watch: www.parentheartwatch.org/
Pediatric Congenital Heart Association: http://conqueringchd.org/
Project ADAM: http://www.chw.org/childrens-and-the-community/resources-for-schools/cardiac-arrest-project-adam/
Simon’s Fund: http://www.simonsfund.org
Sisters-By-Heart: http://www.sisters-by-heart.org/
Tiny Smiles: http://www.tinysmiles.net