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ELECTRONIC ARTICLE:
James R. Laidler
US Department of Education Data on "Autism" Are Not Reliable for Tracking Autism Prevalence
Pediatrics 2005; 116: e120-e124 [Abstract] [Full text] [PDF]
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[Read eLetters] Transition from elementary to middle school smooth?
John P Heptonstall   (21 August 2005)

Transition from elementary to middle school smooth? 21 August 2005
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John P Heptonstall,
Practitioner of Trad. Chinese Medicine
AAOM, BAcC, CMA

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Re: Transition from elementary to middle school smooth?

john{at}mac-tcm.demon.co.uk John P Heptonstall

Sir

The author comments...

"The interval between ages 11 and 12 years is the time when most children make the transition from elementary school to middle school. Although it might be expected that moving from the structured academic and social environment of elementary school to the more self-directed environment of middle school would "unmask" milder cases of autism, the USDE data show just the opposite".

Would the US situation during the period covered by the authors' comments bear a similar relationship to UK children at that time of transition affecting autistic children at the age 11-12?

By this I mean that many autistic children were not being diagnosed until around 7 or 8 years of age - and it is only then they begin the often lengthy process of seeking further appropriate care and/or education placements. They may have already been annually statemented, numerous times, before that diagnosis perhaps (as my son was) as severely mentally retarded long before autism was finally the given diagnosis.

In the UK during the 80s and well into the 90s there appeared to be a great reluctance on behalf of the educational establishment to have autism diagnosed - such a diagnosis would require vastly increased funding and deliberations of special educational needs outside government schooling into much rarer private (and very expensive) placements essential for the more severely afflicted.

Conversely many less severely afflicted children continued to middle and secondary schools with or without a solid diagnosis of an ASD - many being Aspergers children who might later emerge as schooling became more stressful and would then be statemented.

The transition between 'diagnosis followed by statement of educational needs applied to that diagnosis' (which for my son took 2 to 3 years) and 'allocation of appropriate educational pacement' took many children of 7 or 8 years of age to the 11-12 transition years and could therefore confuse transition data analysis that failed to account for those chidren who moved to special placements and not onward to middle or secondary schools.

In other words, is it the lack of appreciation (and therefore interpretation of data) of those realities of transition in autistic childrens' lives that the author fails to recognise, or the USDE data that is inapplicable?

Kind regards

John H.

Conflict of Interest:

None declared