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ARTICLE:
Ellen C. Perrin, Corinne Lewkowicz, and Martin H. Young
Shared Vision: Concordance Among Fathers, Mothers, and Pediatricians About Unmet Needs of Children With Chronic Health Conditions
Pediatrics 2000; 105: 277-285 [Abstract] [Full text] [PDF]
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[Read eLetters] The need for parents with children with chronic disease to have counseling support services
Mary O'Connor Harris   (21 February 2000)

The need for parents with children with chronic disease to have counseling support services 21 February 2000
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Mary O'Connor Harris,
Executive Director
Family Assessment,Counseling & Educational Services

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Re: The need for parents with children with chronic disease to have counseling support services

maryFACES{at}home.com Mary O'Connor Harris

Our agency focuses on the needs of the family going through separation and divorce. 20% of the families have children with some form of learning or physical disability. The stress on a marriage is difficult with children who don't have physical problems, and is enormously compounded when a child is chronically ill. So many families who weathered the storm during the most difficult times of the child's development, go on to divorce when the storm is over. While this phenomenon seems contradictory, the aftermath is often a time when the couple cannot regroup and find their marriage again...so much time was invested for so long to the child, and the energy to devote to the marriage had been given to the child's needs. We agree that the family is in grave need at the time of learning of the child's illness to receive the psychological support, and to help the family set boundaries for time for each other, getting caregivers. The recent family who brought their son into a hospital and "dropped him off" was in the news two weeks ago. The family was exhausted beyond measure, and were being considered abusive. We need to find caregivers to help families with the stress from being overtime parents. The anecdotal information is gleaned from 15 years expeerience as a Marriage & Family Therapist in practice and supervising those who work with families.