SPECIAL ARTICLE |
* From the Commonwealth Fund, New York, New York
Abbreviations: AAP, American Academy of Pediatrics
Well-child care is a core service of pediatrics, but it receives little emphasis in pediatric training, reluctant consideration by insurers, and rare attention from researchers. Although it encompasses a variety of health-promoting and disease-preventing services, the desired outcomes of well-child care and quality standards for its provision have not been specified. It is not surprising, then, that preventive care services, as they are being provided currently, are not meeting the needs of many families, especially families with the most vulnerable children. The quality of child health supervision varies greatly among physician practices, and parents are signaling their dissatisfaction by failing to obtain approximately one-half of recommended preventive care services. In addition, evidence of effectiveness is lacking for much of the content of well-child care, which may jeopardize both its place as a covered insurance benefit and its reimbursement. It is time for major revision of well-child care, taking into account the varying needs of individual children and families, the operation of child health care practices, and the broad issues of access to primary care and payment for services within the US health care system. Because preventive health care for children, at least as it occurs within well-child visits, is authoritatively guided by the American Academy of Pediatrics (AAP) Recommendations for Preventive Pediatric Health Care,1 otherwise known as the periodicity schedule, review and revision of well-child care must begin with that document.
| BACKGROUND |
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Other changes within the profession have significantly altered how general pediatricians spend their time. Although pediatric training has emphasized the care of seriously ill children, current trends are increasingly putting the care of such children in the hands of hospitalists, emergency care physicians, and pediatric subspecialists. Unfortunately, the remaining and emerging functions of general pediatricians have been relatively neglected in their professional education. This neglect is not based on a lack of knowledge. During the period in which these changes have occurred, the amount of information about how to promote childrens health and development has been dramatically increasing.
The quality of preventive care for children varies greatly. Among a Medicaid population, only approximately one-fifth of children received preventive and developmental services that met a basic threshold of quality for each aspect of care assessed.5 A national survey of parents found that >94% of parents reported
1 unmet need for parenting guidance, education, or screening by pediatric clinicians in
1 of the content of care areas.6 In general, substantially less than one-half of children and adolescents receive developmental and psychosocial surveillance, disease screening, and anticipatory guidance (P. J. Chung, MD, et al, unpublished data, 2003). More than deficiencies in the education of pediatricians account for these findings. Lack of standards of care and sometimes-unrealistic expectations about the content of well-child care contribute to this variability. Also prompting a reexamination of well-child care is the national attention being placed on reducing medical errors of commission and omission and improving quality by relying on evidence-based medical care approaches. The need to be able to justify or at least rationalize preventive health care for children is rapidly increasing. That rationale must be apparent in the documents guiding the provision of preventive child health care. Therefore, it is time for a serious review of the process of well-child care and the periodicity schedule that guides it.
| THE PERIODICITY SCHEDULE |
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It is difficult to overstate the importance of this document in shaping the schedule and content of well-child care in the United States. The periodicity of the schedule is reflected in the organization of the 2 leading references on the content of preventive care for children, ie, Bright Futures7 and Guidelines for Health Supervision,8 and in pediatric screening forms and medical record systems, parent-held records, and numerous booklets and brochures for parent education. Federal regulations require state Medicaid programs to set their own schedules for periodic screening and to consult with "recognized medical organizations involved in child health care" in developing these standards.9 Consequently, state Medicaid program early periodic screening, diagnosis, and treatment services frequently draw directly from the recommendations of the AAP. In the past, private insurers based their well-child care benefits on the AAP periodicity schedule; however, some managed care organizations, such as HealthPartners in Minnesota, have questioned the value of many of the visits and have decided to cover fewer visits during the first 1 year of life.10
Despite its importance, the current periodicity schedule has become anachronistic and, like its predecessors, it is not a scientific document. The first schedule for preventive child health care was produced in 1967 by the Council on Pediatric Practice of the AAP.11 The council acknowledged its subjective origins and anticipated that revision would be needed. They wrote, "The Schedule for Preventive Child Health Care represents an amalgamation of schedules used in various clinics and private offices and may not prove feasible for all situations. Modifications will, no doubt, be made in the future."11 The original council and its successors also designed the schedule to allow preventive care to be individualized to suit the patient and the practice. The current recommendations commence, "Each child and family is unique; therefore these Recommendations for Preventive Pediatric Health Care are designed for the care of children who are receiving competent parenting, have no manifestations of any important health problems, and are growing and developing in a satisfactory fashion. Additional visits may be necessary if circumstances suggest variations from normal."12 A large proportion of children and families certainly fall into the latter category, but there is no evidence that pediatricians often individualize the visit schedule.
It is difficult to ascertain the extent to which promoting childrens development has guided the structure of well-child care. The original periodicity schedule seems to have been strongly influenced by the schedule for immunizations recommended in the report of the Committee on the Control of Infectious Diseases.13 The immunization schedule at that time called for 15 visits between birth and 16 years of age, 6 of which were for skin testing for tuberculosis. The preventive care schedule recommended 28 visits during the same period, including annual visits beginning at age 3 years. The influence of the immunization schedule may be inferred from the concordant recommendations for only alternate-year immunizations and tuberculosis testing after age 4 years and the later recommendations by the council, in 1977,14 for only alternate-year preventive care visits after age 6 years. The significant overlap between the immunization and well-child visit schedules may account for the belief of many parents that receiving immunizations is equivalent to receiving well-child care and for the decrease in attendance at well-child visits when no immunizations are scheduled.
The periodicity schedule has been modified by the AAP many times since its introduction. Each change led to a more extensive document and often to more responsibilities for child health care professionals. In addition, many of the components of well-child care that are noted in the schedule can be linked to extensive policy statements and other recommendations about the content of care. Decades of accretion have led to a rich but unwieldy document and to unreasonable expectations of practicing pediatricians.
Even the original council expected preventive care visits to be a challenge to accomplish well. They recognized that the quality of care they outlined would require close to 30 minutes per visit, but they thought that other staff members in the practice could perform approximately one-half of the examination and the physician could complete the remainder in
15 minutes. The need to rely on other health care personnel and to omit certain items of the physical examination during some visits was acknowledged, but the importance of continuity of care by "the childs personal physician" was also clear.11
| PARENTS EXPECTATIONS |
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Furthermore, when queried, parents seem to be quite satisfied with the care they receive. In 1 study, the majority (67%) of parents whose children had a regular source of care reported that their childs physician did an excellent job of providing overall pediatric care and listening carefully to and answering questions.15 Physicians seem to be meeting the expectations of white, nonpoor, and insured families better than those of other families, who are 2 to 4 times more likely to be dissatisfied with the care their children receive, especially in the areas of the childs growth and development and listening to and answering questions.2
Regarding the quality of care, there is evidence that physicians are not using fully their opportunities to provide preventive developmental and psychosocial services during well-child care. Thirty-six percent of parents of young children who responded to a national survey reported that they had discussed none of 6 important topics that were of strong interest to them and were recommended for inclusion in preventive care visits by the AAP.15 Nearly all of the parents had
1 unmet need for child health-related parenting guidance, education, or screening by pediatric clinicians in
1 of the 4 areas assessed, ie, anticipatory guidance and parent education, family psychosocial risks, substance use, and family-centered care.6 Another study found that 40% of parents were not asked whether they had concerns about their childrens learning, development, or behavior.5 Opportunities to help parents are being missed, because parents are >3 times as likely to receive information to address their concerns if the pediatric clinician inquires about their concerns.5 Parents whose questions are answered report being more confident in their parenting and less concerned about their childrens development.19
In addition, it seems that parents have not received sufficient information to understand or appreciate well-child care, because they are not using preventive services to the extent they are recommended.20,21 Current recommendations suggest a total of 6 well-child visits from birth through 1 year of age. On average, families report attending only 2.2 preventive visits and 1.7 other visits during the childs first year and 0.98 preventive visits during the following year, when 3 preventive visits are recommended (E.L.S., data from the Medical Expenditure Panel, 2000). Nationally, only 26.9% of young children are up-to-date with their immunizations (
3 doses of diphtheria-pertussis-tetanus vaccine,
3 doses of poliovirus vaccine, and
1 dose of a measles-containing vaccine) by the end of their 12th month; that rate reaches 82.7% by 2 years of age.22
| EXPERIENCE IN PRACTICE |
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| BARRIERS TO HIGH-QUALITY PREVENTIVE CARE |
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| THE RIGHT THING FOR EACH CHILD AT THE RIGHT TIME |
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| CHANGING WELL-CHILD CARE: A ROAD MAP TO QUALITY |
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| CHANGING THE PERIODICITY SCHEDULE |
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Naming Each Periodic Visit
The content of well-child visits must remain sufficiently flexible to allow parents to raise and clinicians to elicit and address current concerns. Education of parents is likely to be most effective during these teachable moments. However, the current system is not doing well conveying to parents the purpose and importance of each well-child visit. It is unlikely that the current, age-based schedule, which uses labels such as "the 6-month visit," has any intrinsic meaning to parents. The fact that children attend fewer than one-half of the recommended well-child visits, even when financial barriers do not exist, suggests that parents do not value pediatric preventive services as they are currently provided.21 One way to give meaning and potentially greater value to well-child visits would be to name them. Each visit could be named to indicate the developmental issue that would be its focus, although not its exclusive content. For example, the 9-month visit might become the "Understanding Your Childs Personality" visit, at which issues of temperament are discussed. Naming visits accomplishes several useful things. It allows pediatricians to prioritize the content of each visit without predetermining the exact content of anticipatory guidance and parent education. Naming is also a marketing device, making the value of each visit more clear. Named visits allow parents and their older children to anticipate some of the content of the visit and to formulate questions about the focus topic. The use of named visits also can facilitate negotiations between pediatricians and parents or adolescent patients, not only about the content of each visit but also about the necessity of each visit for that particular child and family, ie, truly family-centered care. Experienced parents may think they already know what they need to know about a particular topic, whereas the pediatrician may want to emphasize the need to individualize approaches to child-rearing. Negotiating the content of care increases agreement between the practitioner and the patient regarding problems that need to be addressed and is associated with a greater likelihood that the problem will be monitored by the practitioner, with greater improvement reported by the patient.29
Eliminating Inefficiencies
The need to improve the efficiency and effectiveness of well-child care is indisputable. One approach is to eliminate unnecessary procedures. Some routine well-child care content, such as performing a physical examination at each visit, likely is without value in identifying physical problems, although a modified examination can yield reliable information about childrens development.30,31 Similarly, developmental screening using a structured, validated, developmental screener needs to be performed but only a few times during the first several years of life if developmental surveillance is integrated into each preventive care visit.32 A revised schedule can give practitioners permission to omit routine but sometimes unnecessary care. A revision also could facilitate the sequential provision of services. Not every service needs to be provided to every child at every visit, and some services can occur at acute care visits. Some services can be provided individually, such as at a "shot clinic," or provided outside the office setting, such as vision screening performed by some school systems. Preventive child health care should be a flexible and additive process, so that at the end of some intervals comprehensive care has been provided and documented.
| LOW-COST CHANGES TO OFFICE SYSTEMS |
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Reminding Patients and Physicians
Research on various aspects of office practice and preventive care has identified a number of other changes that can improve the quality of well-child care.34,35 The relatively long interval between the time when parents make a preventive care appointment and the occurrence of that appointment is a problem, resulting in high "no-show" rates and missed opportunities for care. Shorter intervals between making an appointment and receiving care are ideal and can be achieved by using advanced access-scheduling systems.36 In addition, mailed and/or telephone-delivered appointment reminder systems are effective in reducing missed appointments. For providers, a preventive services flowsheet in each childs chart, on which the provision of preventive services can be documented, serves as an effective prompt to remind staff members and the pediatrician what services ought to be provided at a given visit.
| STANDARDS FOR PREVENTIVE CARE QUALITY |
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| THE COMMUNITY OF CHILD AND FAMILY ADVOCATES |
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| CONCLUSIONS |
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There is evidence, however, that simply providing more of the well-child care that is currently available is unlikely to succeed. First, the current quality of preventive care for children is quite variable, and the needs of many children and parents are not being met. Second, developmental and behavioral problems of all types seem to be increasing and to be occurring at younger ages. Third, even parents who are satisfied with their childrens care report many unmet needs. Finally, the low rate of attendance at well-child visits is alarming and should be seen as evidence of a system of care that needs to be substantially overhauled. The existing guidance and approaches to well-child care are inadequate to the task and stand as barriers to effective and efficient care.
As a first step toward addressing these issues, the AAP should begin the much-needed process of thoroughly revising its Recommendations for Preventive Pediatric Health Care, on the basis of childrens development and families needs for education and support. This revision should incorporate the recommendations noted above and should integrate this work into the recently begun Bright Futures initiatives at the AAP. Those initiatives should look beyond schedules and their content and should consider that well-child care is, or should be, more than well-child visits. That consideration has broad implications for the organization, financing, and provision of child health care. The AAP also should continue with its efforts to help clinicians improve the efficiency of their practices, while sustaining and enhancing its efforts to define standards of high-quality preventive care.
Undertaking these activities is a daunting proposition, because the current approach to well-child care draws on a long tradition and is intimately associated with the education and practice of general pediatricians, insurance benefits and reimbursement policies, and the effectiveness of other systems, such as childcare and public education systems, on which families rely. If performed poorly, efforts at revision could jeopardize much that is central to pediatrics. In the absence of a rational scientific approach to and basis for preventive services for children, the future of primary care pediatrics is tenuous. If performed well, however, revisions could enhance the effectiveness not only of child health care but also of the other systems affecting children. The consequences of adopting a new periodicity schedule, more efficient care processes, and explicit standards for well-child care would include structured assessments, improved quality, and more individualized care.
| ACKNOWLEDGMENTS |
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| FOOTNOTES |
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Reprint requests to (E.L.S.) Commonwealth Fund, One E 75th St, New York, NY 10021-2692. E-mail: els{at}cmwf.org
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