PEDIATRICS Vol. 110 No. 6 December 2002, pp. 1301-1303
Introduction
Conference Chairperson
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INTRODUCTION |
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In 1984, US Surgeon General C. Everett Koop, MD, cohosted a national invitational conference with Undersecretary of Education Madeline Will, focusing on the needs of older adolescents with chronic and disabling conditions.1 For the first time, issues of health care transition were on the national radar. This new attention was brought about by dramatically improved survival rates during the 1970s and early 1980s for children born with chronic and disabling conditions. That conference was followed 5 years later by the 1989 Surgeon General’s Conference titled "Growing Up and Getting Medical Care: Youth with Special Health Care Needs."2 That conference set forth a national agenda in training, research, and program development with a goal of establishing a seamless health care system that would allow young people with special health care needs to move from child-centered to adult-centered services.
Today, nearly 2 decades after the first invitational conference, the process of transitioning youth with special health needs to adult health care appears to be only marginally further ahead of where it was at that time. No doubt, there is more awareness today of the issues facing older adolescents and young adults with special health care needs than there was a generation ago. So too, our knowledge of impediments to and factors that facilitate the transition process has been more clearly established. But it is equally clear that the medical community, specifically, and the health care community, more broadly, have yet to put into place a set of changes needed to ensure that young people most dependent on coordinated health care services are able to make the transition to the adult health care system and still receive the services that they need.
It is against this backdrop that in September 2001, the American Academy of Pediatrics sponsored a national invitational conference to bring
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