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PEDIATRICS Vol. 102 No. 1 July 1998, pp. 137-139

COMMENTARY:
A New Definition of Children With Special Health Care Needs

The first 300 words of the full text of this article appear below.

Developing community systems of services for children with special health care needs represents a significant challenge for pediatricians, families, managed care organizations, and public and private agencies providing services to this population. At the state level, Maternal and Child Health (MCH) and Children With Special Health Care Needs (CSHCN) programs are vested with the responsibility for planning and developing systems of care for all children with special health care needs. Historically, these programs have been supported through Title V of the Social Security Act, with state-matching funds, to provide health services to selected groups of children with special needs, typically those with complex physical conditions. However, during the last half-century, service systems have become increasingly complex as a result of health, education, and social policy changes, as well as changes in the epidemiology of child health, including increases in the number and proportion of children with chronic conditions and disabilities and changes in their case-mix.1-4 These changes have resulted in gaps in some service areas and duplication in other areas, as well as fragmentation in the way service systems are organized.5

Recognizing these difficulties, health policy leaders at the state and federal levels, with broad input from public and private agencies, providers, and families, effected legislative changes in the federal Omnibus Budget Reconciliation Act of 1989, which expanded the mission of CSHCN programs to facilitate the development of community-based systems of services for children with special health care needs and their families. Since then, the explosive growth of managed care has presented new challenges and opportunities as well as a heightened urgency for the development of systems of care that integrate health and related services for this population.6,7

Developing systems to serve children with special health care needs requires a clear definition of the population to be served. State CSHCN programs . . . [Full Text of this Article]


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Unmet Need for Routine and Specialty Care: Data From the National Survey of Children With Special Health Care Needs
Pediatrics, February 1, 2004; 113(2): e109 - 115.
[Abstract] [Full Text] [PDF]


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CirculationHome page
M. F. Hazinski, D. Markenson, S. Neish, M. Gerardi, J. Hootman, G. Nichol, H. Taras, R. Hickey, R. O'Connor, J. Potts, et al.
Response to Cardiac Arrest and Selected Life-Threatening Medical Emergencies: The Medical Emergency Response Plan for Schools: A Statement for Healthcare Providers, Policymakers, School Administrators, and Community Leaders
Circulation, January 20, 2004; 109(2): 278 - 291.
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PediatricsHome page
M. F. Hazinski, D. Markenson, S. Neish, M. Gerardi, J. Hootman, G. Nichol, H. Taras, R. Hickey, R. O'Connor, J. Potts, et al.
Response to Cardiac Arrest and Selected Life-Threatening Medical Emergencies: The Medical Emergency Response Plan for Schools. A Statement for Healthcare Providers, Policymakers, School Administrators, and Community Leaders
Pediatrics, January 1, 2004; 113(1): 155 - 168.
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PediatricsHome page
P. G. Szilagyi, E. Shenkman, C. Brach, B. J. LaClair, N. Swigonski, A. Dick, L. P. Shone, V. A. Schaffer, J. F. Col, G. Eckert, et al.
Children With Special Health Care Needs Enrolled in the State Children's Health Insurance Program (SCHIP): Patient Characteristics and Health Care Needs
Pediatrics, December 1, 2003; 112(6): e508 - 520.
[Abstract] [Full Text] [PDF]


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J Pediatr PsycholHome page
L. M. Youngblade and E. A. Shenkman
Congruence Between Parents' and Adolescents' Reports of Special Health Care Needs in a Title XXI Program
J. Pediatr. Psychol., September 1, 2003; 28(6): 393 - 401.
[Abstract] [Full Text] [PDF]


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PediatricsHome page
W. E. Weller, C. S. Minkovitz, and G. F. Anderson
Utilization of Medical and Health-Related Services Among School-Age Children and Adolescents With Special Health Care Needs (1994 National Health Interview Survey on Disability [NHIS-D] Baseline Data)
Pediatrics, September 1, 2003; 112(3): 593 - 603.
[Abstract] [Full Text] [PDF]


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PediatricsHome page
P. C. van Dyck
A History of Child Health Equity Legislation in the United States
Pediatrics, September 1, 2003; 112(3): 727 - 730.
[Abstract] [Full Text] [PDF]


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PediatricsHome page
H. Sanders, M. F. Davis, B. Duncan, F. J. Meaney, J. Haynes, and L. L. Barton
Use of Complementary and Alternative Medical Therapies Among Children With Special Health Care Needs in Southern Arizona
Pediatrics, March 1, 2003; 111(3): 584 - 587.
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The Journal of School NursingHome page
C. Houghton
A Mentoring Program for New School Nurses
The Journal of School Nursing, February 1, 2003; 19(1): 24 - 29.
[Abstract] [Full Text] [PDF]


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PediatricsHome page
J. Reiss and R. Gibson
Health Care Transition: Destinations Unknown
Pediatrics, December 1, 2002; 110(6): 1307 - 1314.
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PediatricsHome page
P. Scal
Transition for Youth With Chronic Conditions: Primary Care Physicians' Approaches
Pediatrics, December 1, 2002; 110(6): 1315 - 1321.
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Arch Pediatr Adolesc MedHome page
J. M. Neff, J. Valentine, A. Park, J. Hicks-Thomson, D. A. Christakis, J. Muldoon, and S. Churchill
Trends in Pediatric Hospitalizations of Children in Washington State by Insurance and Chronic Condition Status, 1991-1998
Arch Pediatr Adolesc Med, July 1, 2002; 156(7): 703 - 709.
[Abstract] [Full Text] [PDF]


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Journal of Early InterventionHome page
R. N. Roberts
Stating the Obvious: Why Do We Care About Access to Health Care?
Journal of Early Intervention, January 1, 2002; 25(1): 12 - 14.
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The Journal of School NursingHome page
J. C. Barrett
Teaching Teachers About School Health Emergencies
The Journal of School Nursing, December 1, 2001; 17(6): 316 - 322.
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