PEDIATRICS Vol. 100 No. 2 August 1997, pp. 244-251
,
, and
From the * Department of Pediatrics, Albert Einstein College of
Medicine, Bronx, New York;
Department of Pediatrics, Rainbow Babies
and Children's Hospital, Cleveland, Ohio; § Department of Pediatrics,
Yale Uni-versity School of Medicine, New Haven, Connecticut;
Department of Pediatrics, University of Massachussetts Medical
Center, Worcester, Massachusetts; and the ¶ Departments of
Pediatrics, Epidemiology and Biostatistics, McGill University,
Montreal, Quebec, Canada.
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INTRODUCTION |
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A child's serious illness or disability can place psychologic and social burdens on both child and family.1-10 Epidemiologic data show that children with chronic health conditions have higher rates of mental health problems than children without such conditions.11-14 Pless and Wadsworth15 have documented that higher rates of psychologic morbidity persist into adulthood. Although children themselves bear the major psychosocial burden of their chronic health condition, studies have documented increased psychologic risk among their parents.16-20 The number of children and families who are vulnerable to psychologic problems secondary to child chronic illness is large; estimates of the prevalence of chronic health conditions in children range between 10% and 30%.3,4,9,11,21-23
There is evidence that the psychologic and social needs of these children and families are not adequately addressed through conventional systems of care.24-28 In particular, it has been documented that access to psychologic and support services is limited.25,27-29 For example, Cadman et al11 reported that only one-quarter of the children with a chronic physical illness and a significant mental health problem receive mental health services. Weiland et al30 reported that although children with chronic illnesses are recognized by primary care providers to have more mental health problems, they do not receive more services. Since these reports, an increasing proportion of children with chronic health conditions and disabilities are being cared for in managed care arrangements. It is possible that comprehensive services will be even harder to obtain and more difficult to fund.
The pressing psychologic, developmental, and social needs of these
children have spurred the development of psychosocial interventions to
address mental health problems and maximize the functioning of children
and families as productive members of society. Evaluations of the
effectiveness of such interventions have begun to emerge, although the
theoretical, methodologic, and logistic difficulties associated with
this research are substantial. The
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