PEDIATRICS Vol. 91 No. 5 May 1993, pp. 1048-1055
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Multiculturalism, Chronic Illness, and Disability

Nora Ellen Groce PhD1 and Irving Kenneth Zola PhD1

1 From the Cross-Cultural Program, Newington Children's Hospital, Newington, CT; Yale School of Public Health, New Haven, CT

To gain at least an initial understanding of the underlying beliefs and attitudes in a cross-cultural situation, we believe that the three key points discussed in this paper should prove a significant point of departure:

1. Traditional beliefs about the cause of chronic illness or disability will play a significant role in determining family and community attitudes toward individuals with a disability and will influence when, how, and why medical input is sought.

2. The expectation of survival on the part of parents and community will have an effect on the amount of time, energy, and cooperation shown by family and community for the individual who has an impairment.16

3. The expectations by family and community for the social role(s) an individual with a chronic illness or disability will hold will affect a broad range of issues, including education, social integration, and independence.

Furthermore, although chronic illness and disability are often considered as issues distinct from the full range of problems encountered in society for immigrant and minority groups, in fact, these issues could not be more closely tied. The frequently discussed concerns within the ethnic and minority community about the role of the family, integration and acculturation, social articulation with the greater American society, stress, cross-cultural misunderstanding, and outright prejudice can all compound the problems encountered for the chronically ill or disabled individual in a multicultural society.




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