1 From the Child Development and Rehabilitation Center, Oregon Health Sciences University, Portland
2 From the Graduate Program in Physical Therapy, San Francisco State University/University of California San Francisco
There has been considerable speculation about the inevitability of parental dissatisfaction with being informed about their child's disability. Mothers and fathers of 24 infants with a recently diagnosed disability were interviewed regarding their preferences for how to be told the "bad news." Qualitative analyses revealed nine themes of parental preferences for how to communicate difficult information. Parents affirmed communication themes previously discussed in the literature, such as being told early and together, and identified new ones, such as affective tone and physical contact with their baby. The importance of these themes is presented for this sample. Recommendations for how to present "bad news" can be concisely drawn from these findings. Results suggest that parental dissatisfaction with the process of telling is not inevitable.
Key Words: informing interview diagnosis communication parental satisfaction physician training
Submitted on June 15, 1992
Accepted on September 10, 1992
This article has been cited by other articles:
![]() |
S. Izatt Educational Perspectives: Difficult Conversations in the Neonatal Intensive Care Unit NeoReviews, August 1, 2008; 9(8): e321 - e325. [Abstract] [Full Text] [PDF] |
||||
![]() |
M. Levetown and and the Committee on Bioethics Communicating With Children and Families: From Everyday Interactions to Skill in Conveying Distressing Information Pediatrics, May 1, 2008; 121(5): e1441 - e1460. [Abstract] [Full Text] [PDF] |
||||
![]() |
J. E. Ferguson II, H. L. Kleinert, C. A. Lunney, and L. R. Campbell Resident physicians' competencies and attitudes in delivering a postnatal diagnosis of down syndrome. Obstet. Gynecol., October 1, 2006; 108(4): 898 - 905. [Abstract] [Full Text] [PDF] |
||||
![]() |
B. Skotko Mothers of Children With Down Syndrome Reflect on Their Postnatal Support Pediatrics, January 1, 2005; 115(1): 64 - 77. [Abstract] [Full Text] [PDF] |
||||
![]() |
J. W. Mack and H. E. Grier The Day One Talk J. Clin. Oncol., February 1, 2004; 22(3): 563 - 566. [Full Text] [PDF] |
||||
![]() |
M. BELLEW and S. P. KAY Early Parental Experiences of Obstetric Brachial Plexus Palsy J Hand Surg Eur Vol., August 1, 2003; 28(4): 339 - 346. [Abstract] [Full Text] [PDF] |
||||
![]() |
A. L. Byrnes, N. W. Berk, M. E. Cooper, and M. L. Marazita Parental Evaluation of Informing Interviews for Cleft Lip and/or Palate Pediatrics, August 1, 2003; 112(2): 308 - 313. [Abstract] [Full Text] [PDF] |
||||
![]() |
J. R. Kane, R. G. Barber, M. Jordan, K. T. Tichenor, and K. Camp Supportive/palliative care of children suffering from life-threatening and terminal illness American Journal of Hospice and Palliative Medicine, May 1, 2000; 17(3): 165 - 172. [PDF] |
||||
![]() |
M Cuttini, M Rebagliato, P Bortoli, G Hansen, R de Leeuw, S Lenoir, J Persson, M Reid, M Schroell, U de Vonderweid, et al. Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal unit policies in Europe Arch. Dis. Child. Fetal Neonatal Ed., September 1, 1999; 81(2): 84F - 91. [Abstract] [Full Text] |
||||
![]() |
M. Durbin From Both Sides Now: A Parent-Physician's View of Parent-Doctor Relationships During Pediatric Cancer Treatment Pediatrics, August 1, 1997; 100(2): 263 - 263. [Full Text] [PDF] |
||||