PEDIATRICS Vol. 91 No. 2 February 1993, pp. 383-389
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Family Correlates of a 10-Year Pulmonary Health Trend in Cystic Fibrosis

Joan M. Patterson PhD1, Darryl Goetz PhD1, Jeffrey Budd PhD2, and Warren J. Warwick MD2

1 From the School of Public Health, University of Minnesota, Minneapolis
2 From the Department of Pediatrics, University of Minnesota, Minneapolis

In this study, 33% of the variance in the 10-year trend of forced expiratory volume in 1 second (FEV1), used as an index of pulmonary health, was explained by differences in family characteristics at the start of the study. Balanced family coping, a family emphasis on personal growth, and compliance with treatment for 91 children with cystic fibrosis were assessed at the start of the study and the FEV1 was observed at every clinic visit over the next 10 years. When both parents' coping emphasized family integration, support for self, and medical consultation, the FEV1 trend was better. Compliance with daily chest physical therapy and with quarterly clinic visits was associated with a better FEV1 trend. Poorer FEV1 trend was associated with active social involvement of family members. Older patients and patients whose parents worked more hours outside the home had lower compliance. These findings support the importance of encouraging families to balance their resources between child's health needs and family needs.

Key Words: cystic fibrosis • psychosocial adaptation • family • compliance • health trend • pulmonary function • forced expiratory volume

Submitted on December 5, 1991
Accepted on August 20, 1992




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