PEDIATRICS Vol. 83 No. 2 February 1989, pp. 204-210
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Knowledge and Concerns About Acquired Immunodeficiency Syndrome and Their Relationship to Behavior Among Adolescents With Hemophilia

Kim J. Overby MD1, Bernard Lo MD1, and Iris F. Litt MD1

1 The Department of Pediatrics, Stanford University School of Medicine, Stanford, California, and the Department of Internal Medicine, University of California-San Francisco Medical Center, San Francisco

The knowledge and concerns regarding acquired immunodeficiency syndrome (AIDS) and their relationship to certain behaviors among adolescents with hemophilia, a pediatric risk group with human immunodeficiency virus (HIV) antibody positivity rate as high as 70% to 90%, are described. Information was obtained from 26 patients, 13 to 19 years of age, through the use of a confidential self-administered questionnaire and a semistructured interview. In general, subjects demonstrated a high level of factual knowledge regarding the cause, natural history, transmission, and prevention of AIDS. Despite this, participants frequently behaved in ways that were potentially harmful to themselves and others. Specifically, although aware of the importance of using condoms, sexually active adolescents with hemophilia were not practicing safe sex. Restriction in the use of heat-treated clotting factor because of concerns about AIDS was also frequently reported. Professionals providing AIDS education and counseling for these individuals need to be cognizant of the concerns and social skills of this population; they should focus not only on factual information but also on the social and situational pressures confronting these teenagers, which may be more immediate determinants of their behavior and well-being. As AIDS continues to spread into the general population, these findings have relevance to AIDS education and health policy efforts aimed at all adolescents.

Key Words: acquired immune deficiency syndrome • hemophilia • human immunodeficiency virus • adolescent • human sexuality

Submitted on December 14, 1987
Accepted on March 2, 1988




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