PEDIATRICS Vol. 77 No. 5 May 1986, pp. 738-744
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Psychosocial Issues in Pediatric Organ Transplantation: The Parents' Perspective

Larry M. Gold ACSW1, Beverly S. Kirkpatrick MSW1, F. Jay Fricker MD1, and Basil J. Zitelli MD1

1 From the Departments of Clinical Social Work, Pediatrics, and Cardiology, Chidren's Hospital of Pittsburgh, Pittsburgh

The process of organ transplantation for a child has a profound impact on the entire family. Parents are faced with a number of psychosocial stresses many of which are unique in a pediatric hospital setting. We report the information provided by parents who have participated in a support group established for those with children undergoing heart and liver transplantation. Descriptive information gathered throughout the past 4 years in this group suggests that there are three specific stages that these families must endure: preoperative, perioperative, and long-term postoperative. The major psychosocial obstacles for families at each stage of the transplant process are described in detail. This information provides the health care professional with a basic framework to understand and provide guidance to the families of transplant patients.

Key Words: organ transplantation • parents' group • psychosocial stress

Submitted on April 15, 1985
Accepted on July 29, 1985




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