1 Department of Pediatrics, University of Florida, College of Medicine, Gainesville, Florida 32610
2 Medical Genetics Center, University of Texas, Health Science Center at Houston, Graduate School of Biomedical Sciences
3 Department of Pediatrics, University of Texas, Cancer System Cancer Center, M. D. Anderson Hospital and Tumor Institute, Houston, Texas 77030
The argument here, however, is not that these patients prove that transfusions need be given less frequently, because that would constitute a post hoc justification on medical grounds of what was an ethical decision.
The final decision to abide by or try to override a patient's wishes must rest with the physician, who alone can perceive the unique needs and sensitivities (both medical and emotional) of his patient. The tendency often is to downplay the emotional needs and excessively magnify the medical needs. This group of patients constitutes a challenge to bring the issues into sharp focus and into true perspective.
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