THE ROLE OF THE PEDIATRICIAN AS OMBUDSMAN IN THE HEALTH CARE OF THE YOUNG HANDICAPPED CHILD
1 Center for Craniofacial Anomalies and the Department of Pediatrics, Abraham Lincoln School of Medicine, University of Illinois at the Medical Center, Chicago, Illinois
Using the care of children with craniofacial malformations as an illustrative example, it is the purpose of this paper to suggest that the pediatrician is the logical person to serve as ombudsman for the handicapped child. The organization of treatment, and indeed, of daily life, for such a child and his family has such numerous and such complex ramifications that it demands the direction of the one individual with knowledge and interest in the overall problems of the child as a person and his family. The child's medical care, and ultimately the child himself, becomes fragmented and lost among the various specialties evaluating and treating him unless the pediatrician is diagnosing, organizing, selecting, interpreting, integrating, and implementing the total care. By accepting this responsibility, the pediatrician rightfully assumes a primary position rather than the secondary or even forgotten one he has sometimes unfortunately occupied.
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