PEDIATRICS Vol. 3 No. 5 May 1949, pp. 588-596
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SOCIAL ADJUSTMENT OF SIX PATIENTS WITH HEMOPHILIA PRIOR TO AND DURING PROPHYLACTIC TREATMENT

ETHEL COHEN M.S.1 and ROSALIND L. HERRMANN B.A.1

1 The Social Service Department, Beth Israel Hospital, Boston, Mass.

A study has been made of six patients treated for hemophilia by repeated frequent infusions of plasma.

Prior to beginning treatment these patients were semi-invalids, hospitalized frequently for periods of weeks and months and handicapped in their adjustment to normal social life. Since treatment they and their families have gained a feeling of confidence, without fear of hemorrhage "hanging over their heads." They know that if a hemorrhage occurs, it probably will not incapacitate them, but that even if it does, the period of incapacitation will be comparatively short. Our observations indicate great improvement in the lives of the patients studied, Whatever the future may hold for these patients, they have acquired a new outlook on life and many positive experiences. Also, from this study some insight has been gained into the social component of this disease and of the problems both solved and created by effective treatment.

Submitted on August 16, 1948




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