Published online December 16, 2008
PEDIATRICS Vol. 123 Supplement January 2009, pp. S122-S124 (doi:10.1542/10.1542/peds.2008-1755N)
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SUPPLEMENT ARTICLE


Advancing Patient-Centered Pediatric Care Through Health Information Exchange: Update From the American Health Information Community Personalized Health Care Workgroup

Kristin A. Brinner, PhD and Gregory J. Downing, DO, PhD

US Department of Health and Human Services, Washington, DC

The Personalized Health Care Workgroup of the American Health Information Community was formed to foster a broad, community-based approach to facilitate the incorporation of interoperable, clinically useful, genetic/genomic information and analytical tools into electronic health records, to support clinical decision-making. The Personalized Health Care Workgroup has developed a series of use cases that outline the informational needs of multiple stakeholders (eg, patients, clinicians, organizations, and systems) and describe the information systems necessary to connect these stakeholders at multiple levels. These use case scenarios offer a guide for standardized data elements and architecture that enable interoperability (content sharing) among different formats of patient electronic health records.

Key Words: personalized health care • newborn screening • family health history • genetic testing • health information technology • electronic health record • clinical decision support • use case

Abbreviations: AHIC—American Health Information Community • EHR—electronic health record • HIT—health information technology • PHC—personalized health care

Accepted Sep 11, 2008.


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