Published online October 31, 2008
PEDIATRICS Vol. 122 No. 5 November 2008, pp. e950-e958 (doi:10.1542/peds.2008-0390)
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ARTICLE

Fears About HIV Transmission in Families With an HIV-Infected Parent: A Qualitative Analysis

Burton O. Cowgill, PhD, MPHa, Laura M. Bogart, LM, PhDb,c, Rosalie Corona, PhDd, Gery Ryan, PhDb and Mark A. Schuster, MD, PhDb,c

a Department of Pediatrics, Mattel Children's Hospital, David Geffen School of Medicine, and Department of Health Services, School of Public Health, University of California, Los Angeles, California
b Rand Corporation, Santa Monica, California
c Department of Medicine, Children's Hospital Boston and Harvard Medical School, Boston, Massachusetts
d Department of Psychology, Virginia Commonwealth University, Richmond, Virginia

OBJECTIVE. Children of HIV-infected parents may be affected by their parents' disease even if not infected themselves. Because of advances in HIV treatment that have reduced the risk for vertical HIV transmission from mother to child, more HIV-infected adults are having children. Few studies have examined whether families with an HIV-infected parent experience fears about transmission to children and how they address such fears. In this article, we describe transmission-related fears in families with an HIV-infected parent.

METHODS. We used semistructured qualitative interviews, conducted in person from March 2004 to March 2005, with 33 HIV-infected parents, 27 minor children who were 9 to 17 years of age, 19 adult children, and 15 caregivers (adult family members or friends who helped care for the children and/or parents) to investigate their fears about HIV transmission. The parents are a subset from the HIV Cost and Services Utilization Study, a study of people in care for HIV throughout the United States. We analyzed the interview transcripts for themes related to transmission fears.

RESULTS. In many of the families, participants identified ≥1 HIV transmission–related fear. Themes included specific fears related to blood contact, bathroom items, kissing/hugging, and food. Families addressed their fears by educating children about modes of HIV transmission and establishing rules or taking precautions to reduce the risk for HIV transmission in the household. HIV-infected parents were also concerned about catching opportunistic infections from a sick child.

CONCLUSIONS. Many of the fears experienced by HIV-infected parents and their children were based on misconceptions about modes of HIV transmission. Pediatricians and others who treat these children may be able to offer counseling to allay fears that family members have about household transmission of HIV.

Key Words: HIV • family • children • adolescents • transmission

Abbreviations: HCSUS—HIV Cost and Services Utilization Study

Accepted Jul 9, 2008.


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R. Corona, B. O. Cowgill, L. M. Bogart, M. T. Parra, G. Ryan, M. N. Elliott, S. K. Park, J. Patch, and M. A. Schuster
Brief Report: A Qualitative Analysis of Discussions about HIV in Families of Parents with HIV
J. Pediatr. Psychol., July 1, 2009; 34(6): 677 - 680.
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