PEDIATRICS Vol. 118 No. 6 December 2006, pp. e1635-e1643 (doi:10.1542/peds.2006-1133)
ARTICLE |
Surfing for Thinness: A Pilot Study of ProEating Disorder Web Site Usage in Adolescents With Eating Disorders
a Division of Adolescent Medicine, Department of Pediatrics, Stanford University School of Medicine, Mountain View, California
b Department of Psychiatry, Duke University Medical Center, Durham, North Carolina
c Robert Wood Johnson Clinical Scholars Program, Stanford, California
OBJECTIVE. Proeating disorder Web sites are communities of individuals who engage in disordered eating and use the Internet to discuss their activities. Pro-recovery sites, which are less numerous, express a recovery-oriented perspective. This pilot study investigated the awareness and usage of proeating disorder Web sites among adolescents with eating disorders and their parents and explored associations with health and quality of life.
PATIENTS AND METHODS. This was a cross-sectional study of 698 families of patients (aged 1022 years) diagnosed with an eating disorder at Stanford between 1997 and 2004. Anonymous surveys were mailed and offered in clinic. Survey content included questions about disease severity, health outcomes, Web site usage, and parental knowledge of eating disorder Web site usage.
RESULTS. Surveys were returned by 182 individuals: 76 patients and 106 parents. Parents frequently (52.8%) were aware of proeating disorder sites, but an equal number did not know whether their child visited these sites, and only 27.6% had discussed them with their child. Most (62.5%) parents, however, did not know about pro-recovery sites. Forty-one percent of patients visited pro-recovery sites, 35.5% visited proeating disorder sites, 25.0% visited both, and 48.7% visited neither. While visiting proeating disorder sites, 96.0% reported learning new weight loss or purging techniques. However, 46.4% of pro-recovery site visitors also learned new techniques. Proeating disorder site users did not differ from nonusers in health outcomes but reported spending less time on school or schoolwork and had a longer duration of illness. Users of both proeating disorder and pro-recovery sites were hospitalized more than users of neither site.
CONCLUSIONS. Proeating disorder site usage was prevalent among adolescents with eating disorders, yet parents had little knowledge of this. Although use of these sites was not associated with other health outcomes, usage may have a negative impact on quality of life and result in adolescents learning about and adopting disordered eating behaviors.
Key Words: adolescents Internet eating disorders proeating disorder pro-anorexia
Abbreviations: EDeating disorder
Accepted Jun 15, 2006.
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