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PEDIATRICS Vol. 114 No. 2 August 2004, pp. 384-393

A National Assessment of Children With Special Health Care Needs: Prevalence of Special Needs and Use of Health Care Services Among Children in the Military Health System

Thomas V. Williams, PhD^*, Eric M. Schone, PhD, Nancy D. Archibald, MBA, MHA and Joseph W. Thompson, MD, MPH

^* Center for Healthcare Management Studies, Office of the Assistant Secretary of Defense, Health Affairs, TRICARE Management Activity, Falls Church, Virginia
Mathematica Policy Research, Inc, Washington, DC
University of Arkansas Medical School, Little Rock, Arkansas

Objective. Children are frequently perceived to be healthy, low-risk individuals with a majority of clinical services devoted to health maintenance and preventive clinical services. However, a subset of children have unique needs that require specialized care to achieve optimal health outcomes. The purpose of this research was to use survey tools that have been developed to identify children with special health care needs (CSHCN) to measure prevalence and resource needs of these children in the military health system (MHS).

Methods. The US Department of Defense manages the MHS, which is one of the largest integrated health care systems in the world and provides care to almost 2 000 000 children. We incorporated the CSHCN survey screener and assessment questions into the annual health care survey of beneficiaries who are eligible for benefits within the MHS. In addition, we used claims information available from inpatient and outpatient services. We used parent reports from the survey to estimate the prevalence of CSHCN. Incorporating claims data and restricting our analyses to those who were enrolled continuously in a military health maintenance organization (TRICARE Prime), we described utilization of different types of health care resources and compared CSHCN with their healthy counterparts. Finally, we examined alternative types of special needs and performed regression analyses to identify the major determinants of health needs and resource utilization to guide system management and policy development.

Results. CSHCN compose 23% of the TRICARE Prime enrollees who are younger than 18 years and whose parents responded to the survey. The needs of a majority of these children consist of prescription medications and services targeting medical, mental health, and educational needs. CSHCN experience 5 times as many admissions and 10 times as many days in hospitals compared with children without special needs. CSHCN are responsible for nearly half of outpatient visits for enrolled children and more than three quarters of inpatient days. Service utilization varies dramatically by type of special need and other demographic variables.

Conclusion. CSHCN represent a major challenge to organized systems of care and our society. Because they represent a group of children who are particularly at risk with potential for improved health outcomes, efforts to improve quality, coordinate care, and optimize efficiency should focus on this target population.

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Key Words: children with special health care needs • service use • CSHCN screener • military health system

Abbreviations: DoD, US Department of Defense • MHS, military health system • HCSDB, Health Care Survey of DoD Beneficiaries • DEERS, Defense Eligibility and Enrollment Reporting System • SIDR, standard inpatient data record • SADR, standard ambulatory data record • MEPRS, Medical Expense and Performance Reporting System • HCSR, health care service record • CHCS, Center for Health Care Strategies • NHIS, National Health Interview Survey

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Received for publication Feb 6, 2003; Accepted Jan 16, 2004.

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